Endometriosis with the Endoawareness Files

This section is dedicated, especially, towards my Endo-sisters. As you read through their stories, try to put yourself in their shoes and just imagine going through their experiences.

Second time they took ,my right ovary, it was stuck to my other organs caused by the endo. Starting having severe pain again, they did a laparoscopy, found bad adhensions, removed endo and scar tissue. That was surgery number 3. Fast forward a few years, severe pain, doc. put me back on birth control pills to make my periods regural. Doc. had me on pain pills, all during this time, could not function, had 2 or 3 good days a month. Coulndn't hold down a job very well, employers couldn't understand why i was always out of work due to pain. Finally reached my breaking point, told doc point blank, take everything else out. I can't live like this. He fought me up until the surgery then when he got in there and saw the mess, after i went back for after surgery appointment, he say boy you sure needed that done. My fallopian tube was wrapped aroung my bowel, my other ovary was totally destroyed, the endo was everywhere. So i thought good, now i can live a normal life. Well much to my suprise, if the endo didn't raise its ugly head again. This time attaching all my other organs. I feel as if i'm gonna pass out sometimes when i go to the bathroom, it feels as if my insides are coming out. Doc. said i have bad scar tissue again also, the more times they do surgery on you, the more scar tissue it makes. So here we go again, looking at surgery number 5. All these diseases i see on t.v. wanting you to send money for this and that disease, never have i seen one on endometrosis. Endo has ruined lives. This disease definately needs some type of funding. I'll bet there are thousands of women out there relating to similar parts of my story. This has helped so much to put this all in writing. I have sent and received e-mail to other women and it does help emotionally. People who are free of this disease finds it very hard to relate. Am currently on medical leave, don't know when I'll be returning. It's hard enough to drag myself out of bed in the morning. Going to wal-mart exhaustes me. It's straight back home for pain meds and heating pad. My heating pad had become my best friend. I have a very supportive husband but I sometimes feel he's been cheated having a wife like me. He has to pay all the bills right now and the part of the doc bills the insurrance won't pay. He says don't worry about it but I feel useless. Thank for letting me vent. Hang in there.

Get yourself checked as soon as possible. I have stage 4 endo and I lost 90% of my kidney because I did not know. I am about to have surgurey to save the rest of my kidneys. It is important not to put your head in the sand. I am not trying to scare you but dont continue to sleep on it.

You have a wonderful endo website. I'd like to put the link in the "endo sister's survival kit" ok?

Joanne's Story - an email	Stacy's Endo Page
Amanda's Site on Endometriosis	Robin's Endo Page
Jennifer's Endometriosis Site	Endo at the Witche's Sanctuary
Jennifer's Page on Chronic Pain	Dee's Endo Page
Lelia's Endo Page	Sarah's Endo Page
Kat's Endometriosis Homepage	Kimberly's Story - Lupron Hell